There are many children who are cared for by family members because of chronic illness, injury or disability. These families have many challenges and can use respite care to avoid burnout of the primary caregiver.
Families who have a child with disabilities or chronic illnesses require a lot of time to care for the child such as feeding, and health care needs.
Respite care has been around for a long time. It started in the 1960's when the deinstitutionalization movement occurred. Children with special needs were at last kept at home instead of being institutionalized. However, this puts a strain on families due to amount of care involved and the time commitment.
The primary caregiver is typically the mum or dad, and although they love the child the demands of caring for the child 24/7 can be overwhelming and can lead to burnout if respite care is not found and utilized. The intense level of dedication involved can take an emotional and mental toll on both the primary caregiver and every family member. The entire family is in need of individualized respite care.
Organizations such as the United Cerebral Palsy Association, Inc (UCPA) has resources for respite care for families who have children with cerebral palsy. Respite care for families who have children with cerebral palsy is generally temporary relief that can be from one hour up to 3 months, depending on the needs of the family. Respite care can be on an "as-needed" basis or it can be a regularly scheduled respite program. Respite care helps to prevent burnout and family disintegration and is geared for the specific needs of each family member.
Caring for a disabled or chronically ill child affects every family member including parents, siblings, grandparents and other extended family members. This is a major lifestyle change that can impact all family members. Respite care will change over the years, as the child's needs change. Just like a normally developing child has different needs as they grow so does a child with disabilities or who is chronically ill. This is why it is important to have a respite care plan that is assessed and modified on a regular basis.
There are many advantages of benefits of respite care that include relaxation opportunities for the entire family, time to pursue favorite pastimes and new activities, stability to deal with daily responsibilities in times of crisis, involvement in community affairs that take time to nurture, time off to rest and recharge both emotionally and mentally from the strain of 24/7 care. Another important role of respite care is to give individual family members the chance to establish unique identities and to enrich their own growth potential outside of the nurturing and caring of the child.
Respite care is how the caregiver is taken care of when they give so much to the child in need.
Respite care when a child is involved can take place in the child's home, or the child can attend a day care center, or receive volunteer respite care from a friend or neighbor in their home.
For more advice on choosing respite care to cover for your child, see my Ebook, Holistic Doctor Online Guide to Respite Care
Dr Alison Grimston is a holistic doctor who works with complementary therapies and nutritional supplements. She only recommends the best, pharmaceutical grade nutritional supplements, such as those on www.holisticdoctor.usana.com.
Disclaimer: The content of our website is not a substitute for professional medical advice or treatment. Always seek the advice of your doctor relating to any medical condition.











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